Past Events

September 20, 2022 - APDA: Preparing for a Visit with the Neurologist

APDA: Have you ever found yourself stressed about seeing your neurologist? Does it seem like as soon as you sit down, it's time to leave? Have you left the neurologist realizing that you hadn't discussed the issues that you wanted to?

Katelyn Bird, MD, Movement Disorder Specialist and Assistant Professor of Neurology at Boston University Medical Campus, will share tips about how to best prepare for a neurology appointment. The presentation will include strategies for managing stress before the appointment, getting set up once you get to the clinic, and being strategic during your appointment so that you can get the most out of each visit.

Date & Time: Tuesday, September 20, 2022; 1 PM ET

Location: At home via Zoom

Register: Click here to register

September 19, 2022 - SARATOGA PARKINSON’S SUPPORT GROUP MEETING

Saratoga County

SARATOGA PARKINSON’S SUPPORT GROUP SEPTEMBER

Live Meeting on September 19, 2022 at 1PM

Topic: Funding Topics for Long Term Care - Renee Birnbaum, CSA

***New Venue*** Saratoga Public Library, 49 Henry Street, Saratoga Springs, NY 12866

Dutcher Community Room - main floor, south end of building closest to parking lot. Follow the hallway towards the EMERGENCY EXIT and there will be a hanging sign on the right to denote the room entrance.

Questions or information contact:

Kevin McCullough saratoga.parkinsons@gmail.com (518) 222-4247

Marie Thorne softballmom300@yahoo.com (518) 810-8483


Choice Connections NY-Funding options for long term care

  • Home care and Assisted Living:criteria and eligibility

  • Veterans Benefits: disability and aid and attendance pension

  • Long Term Care Insurance: daily allowance and elimination period

  • Community Medicaid

  • Nursing Home Medicaid

  • Choice Connections: who we are and services we provide

  • Community Medicaid Update:

Medicaid changes

  • “What is sure is that there is no lookback as of yet.  Once it begins it will go back to 10/1/20 for Community Medicaid”

  • Every month after the new start date  ie: September 2022 the look back period will increase by a month until a 30 month lookback has been reached

  • Medicaid programs offered: NHTD, TBI Waiver and Managed Long term care

  • Medicaid Assisted Living Program


September 13, 2022 - WPC - Drug repurposing for PD - does it work?

Date: Tuesday, September 13, 2022
Time: 11AM - 12PM EDT
Guest researcher: Simon Stott, PhD
Topic:
Drug repurposing for PD - does it work?

Blog: Drug repurposing for PD - does it work?

Dr. Stott is the Director of Research at Cure Parkinson's. The organization is an international supporter of both lab- and clinic-based research on disease modification in Parkinson's. Originally from New Zealand, Simon has over 15 years of experience in the field of Parkinson's research - in both the academic and biotech industry sector. He has been involved in lab-based research as well as clinical studies, with a number of scientific publications. He also maintains the 'Science of Parkinson's' website, which attempts to explain in plain English the research currently being conducted on Parkinson's.


Register here -> https://web.cvent.com/survey/48deaee0-1c92-4d26-9892-6fdc99e4187e/welcome


September 9, 2022 , 11 AM EDT - THE VICTORY SUMMIT® VIRTUAL EVENT Sleep and Parkinson's

During The Victory Summit Event: Sleep and Parkinson’s, we will explore neurodegeneration, light therapy, different types of sleep-related issues, cognition, mood, exercise, and how they all impact a person living with Parkinson’s. These sessions will not only be informative, but they will also inspire you to take action to improve your quality of life and manage this complicated symptom of Parkinson’s.

Read more https://davisphinneyfoundation.org/events/the-victory-summit-virtual-event-sleep/

Wednesday, September 7, 2022 - ADPA: Palliative Care for Parkinson's Disease

ADPA Dr. Gilbert Hosts: Palliative care is a medical approach for those with complex illnesses, in which the focus is on maximizing quality of life. Contrary to popular belief, palliative care is not just for late-stage disease — this approach can be applied at any stage of the disease, even at the time of diagnosis! However, it does become more important as the disease advances. Many people with Parkinson’s disease (PD) have benefited from the palliative care approach from their physicians (and possibly not even realized it). When a treatment or therapy is added to improve quality of life, that is palliative care!

Our special guest is a movement disorders physician with expertise in palliative care. She will answer your questions about how the palliative care approach can benefit people with PD and help improve your quality of life throughout the continuum of disease.

Register here for this free online program.

Dates & Times: Wednesday, September 7, 2022; 3 PM ET

Location: At home

Register online here

August. 21, 2022 - Capital District PD Support group Summer picnic

Come join us for an afternoon of good food, friendship, and fun. This is a highlight of the CDPSG community calendar!

When:  Sunday, Aug 21, Noon to about 3:00

Where:  South Pavilion, “The Crossings” Park, Colonie

Who:  Everyone in the Capital District Parkinson’s Community – even (especially!) if this is your first event.

Our theme this year is “Something Old, Something New.” We cherish our traditions, and we also welcome new experiences, especially with the support or our community.

  • What’s new at our picnic this year? Instead of a big cook out, we’re having sandwiches as part of potluck.

  • What are some of our picnic traditions? Good food, activities, and fun. We always welcome folks who are new to our community to the picnic; kids and grand-kids are welcome too!

There are many ways for everyone to pitch in before and during the event. We can't do it without you.

DIRECTIONS:  Enter “The Crossings Park of Colonie, 580 Albany Shaker Road, Colonie, NY 12211. Once you enter the park, follow the park road all the way to it’s end, about 6/10 ths of a mile to the pavilion there.

August 6 , 2022 - Hope Soars Fundraiser with the ValleyCats!

Picnic at 6pm; Game at 7pm

Join us for a Hope Soars fundraiser at Joseph L. Bruno Stadium in Troy, and help find a cure for Parkinson's

disease!

Benefiting the Hope Soars Parkinson's Research Fund at Albany Medical Center. $30 Ticket includes a Seat,

Dinner and ValleyCats Cap! TICKETS: Call Mark Burek at 518-428-0056

Or bring a check or cash to Schott's PD Boxing at 10:30 on any Friday before August 6.

21 Vatrano Rd, Albany, NY 12205 .

Come see what PD Boxing is all about and support the program.

August 6 , 2021- Hope Soars Fundraiser with the ValleyCats!

Picnic at 6pm; Game at 7pm

Join us for a Hope Soars fundraiser at Joseph L. Bruno Stadium in Troy, and help find a cure for Parkinson's

disease!

Benefiting the Hope Soars Parkinson's Research Fund at Albany Medical Center. $30 Ticket includes a Seat,

Dinner and ValleyCats Cap! TICKETS: Call Mark Burek at 518-428-0056

Or bring a check or cash to Schott's PD Boxing at 10:30 on any Friday before August 6.

21 Vatrano Rd, Albany, NY 12205 .

Come see what PD Boxing is all about and support the program.