Meeting details - from evens table
If you’re struggling with Parkinson’s disease or know someone who is, it’s incredibly helpful to have a list of organizations that can support you or your loved one along the way. The following is not an exhaustive list, but hopefully it will prove to be a helpful resource.
A personalized virtual fitness program tailored for PD
8 workout types, including Rock Steady Boxing, LSVT, HIIT, Yoga, and Meditation.
A curriculum of live & on-demand classes designed to slow progression.
Albany County Department for Aging
Deb Riitano, Commissioner
162 Washington Avenue
Albany, NY 12210
Phone (518) 447-7198
Older residents who are home-bound and in need of day-to-day assistance, including home delivered meals, should contact Albany County- NY Connects at (518) 447-7177
Albany County NY Connects: 518-447-7177
Older residents who are home-bound and in need of day-to-day assistance, including home delivered meals, should contact Albany County- NY Connects
Albany Guardian Society
The mission of Albany Guardian Society is to improve the lives of seniors in the Capital Region, their families and their caregivers, through information, education, research, and collaboration.
Albany Guardian Society offers 150 classes on age related topics throughout the year.
Alzheimer’s Association, caregiver and referral services,
Shannon Lawler, (518) 867-4999 ext. 306. Serving needs of those dealing with Parkinson’s and other conditions, not restricted to Alzheimer’s
The Alzheimer’s Association 24/7 Helpline (800.272.3900) is available around the clock, 365 days a year. Through this free service, specialists and master’s-level clinicians offer confidential support and information to people living with dementia, caregivers, families and the public.
American Parkinson Disease Association (APDA)
The American Parkinson Disease Association (APDA) is the largest grassroots network dedicated to fighting Parkinson’s disease (PD) and works tirelessly to help the approximately one million with PD in the United States live life to the fullest in the face of this chronic, neurological disorder.
Beyond My Battle
.Helping patients and caregivers manage stress and cultivate resilience.
Based in Saratoga Springs
Emotional e-Toolkit,, E-books, Podcast, Resource Library, Support Groups, Online Community, Workshops, Art Show, Blog
Brian Grant Foundation
The Brian Grant Foundation provides proven tools to improve the well-being of people with Parkinson’s. BGF was established in 2010, following Brian’s diagnosis in 2008 at the age of 36. Though there is no cure for Parkinson’s, exercise, nutrition and a supportive community can help manage symptoms, maintain overall health and prevent other serious illnesses.
Search for actively recruiting studies that you may be able to participate in or learn about new interventions/treatments that are being considered.
ClinicalTrials.gov is a Web-based resource that provides patients, their family members, health care professionals, researchers, and the public with easy access to information on publicly and privately supported clinical studies on a wide range of diseases and conditions. The Web site is maintained by the National Library of Medicine (NLM) at the National Institutes of Health (NIH)
Community Resource Finder
This searchable listing put together by Alzheimer’s Association and AARP, will help you get easy access to resources, community programs and services.
Start your search here https://www.communityresourcefinder.org/
Alzheimer’s Association AARP Community Resource Finder is a database of dementia and aging-related resources powered by Carelike®. The online tool makes it easy for people living with Alzheimer’s and other dementias, family caregivers and those involved in making care-related decisions to find local programs and services.
Community Resource Finder displays resources including, but not limited to:
Alzheimer’s Association programs and events
AARP programs and events
Care at home
Read more of the FAQ here https://www.communityresourcefinder.org/Alz/FAQ
DBS and Me - Boston Scientific
If you are living with Parkinson’s Disease (PD), medication isn’t your only option. Learn about treatment options— like Deep Brain Stimulation (DBS) and find support and care partner resources.
Davis Phinney Foundation
WE HELP PEOPLE WITH PARKINSON’S LIVE WELL TODAY.
Since 2004, the Davis Phinney Foundation has brought to life some of the most important programs, research, content, and events for those affected by Parkinson’s. Our community includes people living with Parkinson’s, Parkinson’s care partners, families and friends of those living with Parkinson’s, physicians, and Parkinson’s allied health professionals.
LSVT BIG®: Physical Therapy for Parkinson’s Disease
LSVT BIG trains people with Parkinson disease (PD) to use their body more normally. People living with PD or other neurological conditions often move differently, with gestures and actions that become smaller and slower. They may have trouble with getting around, getting dressed and with other activities of daily living.
Read more at https://www.lsvtglobal.com/LSVTBig
Find local LSVT Clinicians using this form https://www.lsvtglobal.com/LSVTFindClinicians
LSVT LOUD Lee Silverman Voice Technique, (LSVT, LOUD)
LSVT LOUD is an effective speech treatment for people with Parkinson's disease (PD) and other neurological conditions. Named for Mrs. Lee Silverman (Lee Silverman Voice Treatment), a woman living with PD, it was developed by Dr. Lorraine Ramig and has been scientifically studied for over 25 years with support from the National Institute for Deafness and other Communication Disorders within the National Institutes of Health (NIH) and other funding organizations.
Find local LSVT Clinicians using this form
Melvin Weinstein Parkinson’s Foundation
The Melvin Weinstein Parkinson’s Foundation purchases equipment and supplies necessary to maintain a safe and healthy environment for Parkinson’s patients.
The Melvin Weinstein Parkinson’s Foundation has funded the cost of medications and health care equipment, supplies and services including shower chairs, ramps, electric wheelchairs and scooters, U-Step walkers and canes, computers, lift seats, elevated toilet seats, in-home care, car lifts, tracheotomy kits, speaker phones, tub transfer benches, adult diapers, grab bars for inside the home, and transportation to the doctor’s appointments. These simple provisions can have a profound impact on the day to day lives of people affected by Parkinson’s.
If you have been diagnosed with Parkinson’s disease and would like to apply for assistance, please download and fill out the application here..
Michael J. Fox Foundation
The Michael J. Fox Foundation is dedicated to finding a cure for Parkinson's disease through an aggressively funded research agenda and to ensuring the development of improved therapies for those living with Parkinson's today.
PD SELF -A program for Newly Diagnosed that Improves Quality of Life
PD SELF is a national program for Parkinson’s patients who have been newly diagnosed within the last 3 years. This program provides patients with the motivation, confidence, skills and knowledge to improve their quality of life by introducing them to ways of better managing their disease as it progresses over time. Care partners are encouraged to participate and will be provided with educational tools to be a more effective care partner. Having a care partner is not a requirement
Parkinson & Movement Disorder Alliance
We’re the Parkinson & Movement Disorder Alliance — an independent, national nonprofit dedicated to providing opportunities for people to learn, live more fully and spark meaningful connections around them.
More than 40 million Americans are affected by movement disorders. It’s a challenging reality — one we cannot face alone. PMD Alliance reaches across all communities and partners, including our sister organizations. Yes, in a world where genuine collaboration can be tough to find, we treasure it! Our journey is a team sport.
We’re always people-oriented. Whether it’s those living with a diagnosis, their care partners, adult children or support group leaders, we meet the needs of those we serve by providing solutions that fundamentally enlighten, inform and incite positive change.
The Parkinson Alliance is the umbrella organization for the Parkinson’s Unity Walk that takes place every spring in New York City. They also sponsor Team Parkinson, a fundraising racing event. You can find current news and information on research projects on their site.
Parkinson's Disease Care NY
Using telemedicine, our team can provide care to patients across New York State. As a patient in our Parkinson Disease Care New York Program (PDCNY), you will have access to a Parkinson’s specialist from the University of Rochester Medical Center in the comfort of your own home. All you need is internet access and a device that is capable of accessing the internet, such as a laptop, tablet, or smartphone.
Parkinson's Foundation Helpline: 1-800-4PD-INFO (473-4636)
Staffed by nurses, social workers and health educators, the Parkinson's Foundation Helpline is here to support you in any possible way, including:
Current disease information
Medical issues including symptoms and treatments
Health and social care
Referrals to health professionals and community resources for local support
The Parkinson's Foundation Helpline is open Monday through Friday from 9 a.m. to 7 p.m. ET. We can assist you in either English or Spanish.
Parkinson’s Disease Foundation
Parkinson’s Disease Foundation provides information including news about the disease, information about upcoming events, insight into the latest research, and education about what to expect
Umbrella of the Capital District
Umbrella is a membership organization. For an annual fee, Umbrella members have access to a screened, skilled group of handy persons who provide a variety of services, including home repairs, housekeeping, lawn and gardening and shopping.
World Parkinson' Congress
The World Parkinson Coalition®provides the only international forum on Parkinson's disease that invites all stakeholders to learn about the latest scientific discoveries, medical practices, and care initiatives that improve the lives of people living with Parkinson's disease. By bringing the full Parkinson's community together, including people living with Parkinson's, we hope to expedite the discovery of new treatments for this devastating disease until a cure is found.